Description
About the Client:
We are a supportive and compassionate family dedicated to the well-being and quality of life of our 35-year-old daughter, who is living with chronic fatigue syndrome (CFS), fibromyalgia, and orthostatic intolerance. Our primary focus is to manage her symptoms effectively, improve her daily functioning, and enhance her overall quality of life.
Project Overview:
We are seeking an experienced nursing team specializing in chronic illness management to provide comprehensive support for our family member. This project involves implementing graded exercise therapy, managing chronic pain, and providing orthostatic training to help her cope with fatigue, widespread pain, and dizziness upon standing.
Responsibilities:
– **Graded Exercise Therapy:**
– Develop a personalized graded exercise therapy (GET) program tailored to her physical capabilities and health status.
– Gradually increase the intensity and duration of physical activity to improve stamina and reduce fatigue.
– Monitor her response to exercise, adjusting the program as needed to avoid overexertion and setbacks.
– **Pain Management:**
– Assess the intensity, location, and nature of her pain to develop a comprehensive pain management plan.
– Implement pharmacological interventions, such as analgesics or anti-inflammatory medications, as prescribed.
– Utilize non-pharmacological pain management techniques, including physical therapy, massage, heat/cold therapy, and relaxation techniques.
– **Orthostatic Training:**
– Conduct assessments to understand the extent of her orthostatic intolerance and its impact on daily activities.
– Implement orthostatic training exercises, such as tilt table therapy, to help improve her tolerance to standing and reduce dizziness.
– Educate her on techniques to manage symptoms, such as gradual position changes, increased fluid and salt intake, and wearing compression garments.
– **Symptom Monitoring and Management:**
– Regularly monitor her symptoms of fatigue, pain, and dizziness, adjusting care plans based on her feedback and health status.
– Maintain detailed records of her symptoms, treatments, and responses to interventions.
– Provide strategies to manage flare-ups and minimize the impact of symptoms on her daily life.
– **Family Education and Support:**
– Educate the family on the nature of chronic fatigue syndrome, fibromyalgia, and orthostatic intolerance, and how to support her in managing these conditions.
– Offer practical tips and strategies for creating a supportive home environment that promotes her well-being.
– Provide emotional support and guidance to the family, helping them cope with the challenges of chronic illness management.
– **Interdisciplinary Collaboration:**
– Collaborate closely with her healthcare team, including primary care physicians, pain specialists, physical therapists, and occupational therapists, to ensure coordinated care.
– Facilitate regular follow-up appointments and consultations to monitor her progress and adjust treatment plans as needed.
– Communicate effectively with all members of the healthcare team, providing updates on her status and any changes in the care plan.
Requirements:
– **Qualifications and Experience:**
– Certification or extensive experience in managing chronic illnesses, particularly chronic fatigue syndrome, fibromyalgia, and orthostatic intolerance.
– Proficiency in developing and implementing graded exercise therapy, pain management plans, and orthostatic training.
– Experience in educating patients and families about chronic illness management and symptom monitoring.
– **Skills and Competencies:**
– Strong understanding of the complexities of chronic fatigue syndrome, fibromyalgia, and orthostatic intolerance.
– Excellent communication and interpersonal skills, fostering trust and collaboration with the patient and family.
– Ability to work effectively as part of an interdisciplinary healthcare team, ensuring coordinated and comprehensive care.
– **Personal Attributes:**
– Compassionate and patient-centered approach, dedicated to improving the quality of life for our family member.
– Empathy and sensitivity to the challenges faced by individuals with chronic illnesses and their families.
– Strong organizational skills and attention to detail in managing complex health needs.
Patient Case:
**Management of Chronic Fatigue Syndrome, Fibromyalgia, and Orthostatic Intolerance**
– **Patient:** 35-year-old female
– **Conditions:** Chronic fatigue syndrome, fibromyalgia, and orthostatic intolerance, experiencing fatigue, widespread pain, and dizziness upon standing.
– **Needs:** Comprehensive support including graded exercise therapy, pain management, and orthostatic training to manage symptoms and improve daily functioning and quality of life.
The goal is to ensure effective management of her symptoms, enhance her physical capabilities, and support her overall well-being through a coordinated and compassionate approach to care.
Total Budget: $290,399.04
